Welcome to the Epilepsy12 round 4 data platform
The Royal College of Paediatrics and Child Health (RCPCH)
The RCPCH is improving the health of children everywhere by supporting members and policymakers to build on evidence-based practice.
Our priorities are making the NHS a better place for children and young people, child mortality, public health and child protection. We support these through programmes in research and surveillance, clinical and service standards, quality improvement, clinical audit and policy. We involve children, young people and families in all of our work.
Have your say on how we are doing and complete the 2023 Epilepsy12 User Survey.
The Epilepsy12 team would like to gather feedback on the current data entry process to monitor the impact of our changes and identify any ongoing issues. Your feedback is important to us and we appreciate your time and effort in filling in this short survey, which should take less than 5 minutes.
National Data Opt-Out Exemption (England only)
- The Epilepsy12 audit is now exempt from the NHS National Data Opt-Out.
- Healthcare providers in England no longer need to screen patients against the opt-out list prior to entering their data.
- Patients can still opt out of Epilepsy12 specifically by contacting their clinical team or by emailing the Epilepsy12 team directly at epilepsy12@rcpch.ac.uk. You can indicate this in the first year of care form and the record will be deleted.
- Please take a look at our methodology and data submission page for more information.
Childhood epilepsy
Epilepsy affects around one in every 200 children and young people in the UK (aged 18 and under). The condition is one of the most common significant long-term health conditions of childhood. Epilepsy can have a huge impact on children and families. Epileptic seizures can happen in any part of the brain cortex and what happens depends on where in the brain the seizure is happening. Seizures can be distressing but it’s not just the seizures that are the problem. Children and young people may experience issues with learning, behaviour and emotions. That’s why children and parents need support and guidance from healthcare professionals throughout the stages of diagnosis and treatment.
About Epilepsy12
Epilepsy12 (The UK collaborative clinical audit of health care for children and young people with suspected epileptic seizures) is a national clinical audit established in 2009 and has the continued aim of helping epilepsy services, and those who commission health services, to measure and improve the quality of care for children and young people with seizures and epilepsies. As per rounds 1 - 3 of the audit the audit is overseen by a project board and a dedicated project team within the RCPCH. You can contact the team at: epilepsy12@rcpch.ac.uk or on 020 7092 6157/6056. Dr Colin Dunkley, Consultant Paediatrician, is the current clinical lead for Epilepsy12.
The RCPCH has been re-commissioned to deliver round 4 of Epilepsy12 from 1 April 2022 to 31 March 2025 as part of the National Clinical Audit and Patient Outcomes Programme (NCAPOP). Epilepsy12 has also been confirmed as one of the national audits within the NCAPOP which NHS England advises Trusts to prioritise for participation and inclusion in the NHS England Quality Accounts lists for 2018/19, 2019/20 and 2020/21 which NHS Wales outlines within its National Clinical Audit and Outcome Review Plan for 2019/20 and 2020/21 as one of the National Clinical Audits and Outcome Reviews which all health boards are expected to participate in.
